Rally for Ally is an annual fund-raiser hosted by Ashli Matus George and Tom George, and the Matus and Kelso families to raise awareness and funds for the National Foundation for Ectodermal Dysplasias (NFED). It is a family-friendly, casual, outdoor gathering filled with fun, games, food, raffle and silent auction. Our goal is $25,000 this year...
PLEASE JOIN US!!!
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Proceeds from the Rally are Being raised on behalf of the NFED that provides a support network of families, publications, conferences, scholarships, treatment fund and research. The NFED is the only organization dedicated to serving individuals affected by Ectodermal Dysplasia syndromes and does not receive federal funding. The syndromes are the result of a genetic mutation passed from parent to child. Often, the gentic mutation occurs spontaneously in the affected person where 7 in 10,000 individuals are affected by these rare conditions. This event honors ALLYSON KELSO, born in 2004, with Ectrodactyly Ectodermal Dysplasia Clefting Syndrome, causing the hair, nails, teeth and glands to develop and function abnormally, and in Ally's case, visual impairment.
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Ally resides in Burke, VA with her family, Kristin, Mark, and big sister, Morgan. Ally is the granddaughter of Terri and Jerry Matus and John and Lydia Kelso. She is the niece of Ashli and Tom George and Glenn and Merideth Kelso.
To read Ally's story... http://nfed.org/index.php/meet_our_families/single/allyson-kelsos-story
HOW YOU CAN HELP...
Please consider volunteering at the event or bringing an item to share with the crowd. Available opportunities are seen via Sign up Genius: http://www.signupgenius.com/go/30E0A49A9A72FA64-8thannual
SILENT AUCTION AND RAFFLE ITEMS:
vacation week in Duck, NC, 5-night stay in Puerto Vallarta, Ocean City condo weekend stay, Barnes & Noble color Nook, Keurig coffeemaker, autographed by coaches - college football helmet, portrait sessions, jewelry, recreation passes, golf certficates to Penderbrook, beauty products, wine/top shelf liquor, spa pachage, American Girl's doll of the year!, various restaurant cards, Coach purses many assorted gift baskets, kids items & more...
WHAT TO EXPECT:
A barbeque luncheo provided by Willards BBQ fo Chantilly, hot dogs, mac 'n cheese, sides and fixins, treats, drinks and lots of fun for the kids! The children's craft and game corner is Pirate & Princess themed this year; the chance raffle drawing will be at 1:45 PM and the silent auction closes at 2:30 PM. We will be in the shaded pavilion and picnic area at Nottoway...but please wera sunscreen and dress for the heat!
A suggested donation of $25 per person (or whatever is comfortable for your family) will be collected at the door (cash/check/credit) to benefit the NFED. All donations are tax deductible. Make checks payable to: NFED, memo: Rally for Ally. Bring donation to the Rally or mail to: 410 E. Main St., PO BOX 114, Mascoutah, IL 62258-0114.
Can't attend or want to donate online? Go to http://www.nfed.org/ (click HOW TO HELP, then DONATE. Designate RALLY FOR ALLY in "source" field when prompted).
We will also have RALLY FOR ALLY t-shirts for sale! $12 each, youth and adult sizes. If you are in the local NoVA area and wat to pre-purchase a shirt to wear at Rally for Ally, please email: ashlimatusgeorge@gmail.com
WE ARE SO GREATFUL FOR YOUR SUPPORT!
SEE YOU ON SATURDAY, JUNE 30TH!
